About Ryan

I promised to post more information on Ryan. I am doing this, not to evoke pity, but to remind myself to be thankful for the body that I have been given: Ryan who has just turned 18 last November,suffers from (to name but a few) the following symptoms of this syndrome:
Cystic Fibrosis
Profoundly Deaf (does communicate through picture communication and sign language and also has a cochlear implant).
Abnormalities of the head and facial area resulting in Ryan going through 7 Maxi facial surgery’s over the last 6 years (he still has to have 3 mayor surgeries to his face still as it is growing downwards opposed to growing out so will ultimately block his breathing tract the older he gets).
Full Blown Autism
In addition to the various other symptoms of this syndrome Ryan was diagnosed with Scoliosis which is not part of JBS. His current curvature of the Scoliosis on his spine is 32% however if it goes past 40% with the normal growth pattern Ryan will then have to have his spine fused in order to stop the curvature from further damaging his vital organs namely his lungs, heart, kidneys and digestive organs.